Aaaaaaahhhhh, SPRING....

What else would one do on such a beautiful day but spring cleaning? Ha ha.... Out with the old and in with the new. Well, maybe not "new", but FRESH and CLEAN at least! Several rooms down and feeling good.

I can't believe it's been 2 months since I've posted- then again I can. It's been crazy around here. Anyway, just wanted to let everyone know that we had a trip back to Riley on Thursday last wk and it went really well. We met w/ the eye doctor first and this was the first time they were able to do any type of eye exam on Syler without him being under anesthesia. Yippee! They weren't able to do full exam but we'll take what we can get at this point. They could see enough to know that things aren't any worse and were also able to check his actual vision to some degree. They had him match pictures on a screen across the room and then gradually had the pictures get smaller. It was actually really interesting b/c you could tell right where his eyes started to have trouble seeing. At any rate, they said he is on the low end of normal for a 3-yr-old so that's great considering his history. They also encouraged us to have the GI doctor do a full vitamin/mineral panel drawn on him to check his levels.

Then we headed to the GI doctor and she didn't have much new to say about Sy and she felt bad about that. But she did the full vitamin panel to make sure we weren't missing anything and also to make sure he was absorbing the vitamins we've been giving him. She also did a full metabolic panel to check for celiac and other things, and suggested we see a dietician to make sure he wasn't missing anything in his day-to-day diet. He had several other things checked but thankfully everything came back normal except for his sed rate which is how it has been all along. So in one way the sed rate is discouraging, but these are excellent results b/c it means he is absorbing the vitamin therapy he's been getting for the last 4-6 months. No doubt this is why he was so healthy this winter!!!! Praise God for that!

So no changes in his treatment at this point- continue his eye drops and other medicines until there is some sort of change. Hopefully he will just continue to improve and stay healthy overall.

That's the scoop on Syler! Can't believe he will be 3 this week.... wow. What a trooper :)

***Thank you, Lord, for our sweet baby boy and for how You have held his hand and ours through these last 3 years. Thank you for the gift of his life and the smile on his face. Thank you for Your faithfulness and Your healing touch on his body. Thank you for the great plans You have in store for him in his life. May he always know how much we love him and how much You love him as well. In Jesus' powerful name, AMEN.****